Posted by Angela
on 10/10/2009, 8:23 am, in reply to "One week of mixed emotions"
173.54.57.225
Hi Marlina, first congratulations on your baby girl!! What's her name??
Second, take a deep breath. You're doing the right thing researching and finding out more about PRS. I too, had never heard of it until my daughter was born 3 years ago. I remember feeling as you do - overwhelmed and scared. Let me reassure you that it does get easier - you will be able to sleep again.
Third, all kids are different and that's the thing with PRS babies. There's no across the board thing that works for all of them. Typically the docs tell you not to place her on her back. But there are different circumstances for each kid - my daughter absolutely hated being on her belly and it caused more issues with her breathing than being on her back.
Are you home with her?? How is she eating? Any other concerns - excessive crying, spitting up, not eating? When she's having breathing issues, is it constant or only at certain times? When she is having trouble, or sounding like she's working really hard are there other symptoms? Is she pulling in hard at her belly or her neck to take air in? Are her nostrils flaring when she breathes? How is her color - any bluish tint to her lips at all? Is her breathing really fast? These are all signs of respiratory distress. For your peace of mind, perhaps a visit to your ped would help. Does your ped have any experience witha PRS baby? If not, a children's hospital might be your best bet. In a case like your daughter's (where she seems fine otherwise) a ped with no experience may just push aside the little things. ALso, if her breathing continues to be an issue a sleep study would be a good thing. The you'd know more concretely if she needed help.
It's hard. And it stinks. We all know, we all have been there. If you want to chat more, please feel free to email me, or find me on Yahoo MEssenger.
Email: faywrayy@yahoo.com
Yahoo Messenger id: faywrayy
I also keep a blog about Kate (my PRS baby who is now 3). I wrote a lot about the initial weeks of her diagnosis. If you want to check it out here's the link:
http://pieceofkateb.blogspot.com/
Angela
--Previous Message--
: Hello,
: I am a first time mom and my little girl is
: one week old today. I knew something from
: the first day but the nurses and doctor
: reassured me she is in perfect health. I
: persisted with questions to another doctor
: and learned that she has PRS. She does not
: have a cleft palate but when she breathes
: she sounds like she is struggling SO hard.
: The only time the sound goes away is when
: she lays on her back. However, I have been
: warned to lay her on her side and never on
: her back for the tongue reasons. What is
: this sound. My doctor says we have nothing
: to worry about and we will not need any
: treatment. I dont get any sleep unless my
: husband is awake to watch her. I am so
: afraid of her choking in her sleep. I am a
: very overwhelmed first time mommy. Until
: Monday I had never heard the name PRS. Any
: advice is welcome and appreciated.
: Thank you
:
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