Posted by Shawna Lewis
on 9/26/2009, 8:59 pm, in reply to "Mild PRS"
216.139.112.108
--Previous Message--
: My son is now 16 months. He was diagnosed
: with a very very mild form of PRS at birth,
: i .e. he escaped a cleft pallet and
: breathing issues. Because of the mildness,
: I feel the doctors have overlooked his case.
: Even though over his life I have complained
: about discomfort breastfeeding(which I have
: worked through because I feel lucky to have
: him breastfeeding at all), difficulty
: getting him to accept solids and very
: frequent night wakings (up to 10 times a
: night).
:
: I can't help but think that these are
: related to the PRS....but I can't find
: anyone to validate my concerns. They keep
: telling me it is behavioural or he is
: breastfeeding too much!
:
: I live in an area where the doctors are not
: very knowledgable about PRS, but
:
:Hello. My daughter who is now three was born with pierre robin syndrom. I had trouble getting her to eat baby food, but she did have a cleft palate. My daughter has was two years old untill she slept through the night. I think that you should try seeing sleep doctor, also you might try to make an appt with a clepft palate dr, they deal with pierre robin often. my daughter had her jaw moved out and she doesnt really have trouble eating now.
:
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