Pierre Robin Network Message Central: Mild PRS

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Mild PRS

Posted by Candice on 9/25/2009, 9:22 am
206.188.130.188

My son is now 16 months. He was diagnosed with a very very mild form of PRS at birth, i .e. he escaped a cleft pallet and breathing issues. Because of the mildness, I feel the doctors have overlooked his case. Even though over his life I have complained about discomfort breastfeeding(which I have worked through because I feel lucky to have him breastfeeding at all), difficulty getting him to accept solids and very frequent night wakings (up to 10 times a night).

I can't help but think that these are related to the PRS....but I can't find anyone to validate my concerns. They keep telling me it is behavioural or he is breastfeeding too much!

I live in an area where the doctors are not very knowledgable about PRS, but

Message Thread:

Mild PRS - Candice 9/25/2009, 9:22 am
- Re: Mild PRS - Holly 10/5/2009, 7:05 am
- Re: Mild PRS - Shawna Lewis 9/26/2009, 8:59 pm
  - Re: Mild PRS - Susie 10/2/2009, 9:50 am
    - Re: Mild PRS - nicola 10/6/2009, 11:34 am
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--Previous Message-- : My son is now 16 months. He was diagnosed : with a very very mild form of PRS at birth, : i .e. he escaped a cleft pallet and : breathing issues. Because of the mildness, : I feel the doctors have overlooked his case. : Even though over his life I have complained : about discomfort breastfeeding(which I have : worked through because I feel lucky to have : him breastfeeding at all), difficulty : getting him to accept solids and very : frequent night wakings (up to 10 times a : night). : : I can't help but think that these are : related to the PRS....but I can't find : anyone to validate my concerns. They keep : telling me it is behavioural or he is : breastfeeding too much! : : I live in an area where the doctors are not : very knowledgable about PRS, but : : :

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