Posted by Katie
on 8/23/2009, 4:41 pm
98.206.53.35
When my son's g-tube was placed at 6 weeks of age, I now see that I was naive to think it'd be so temporary. He just turned one and is not eating. His palate has yet to be closed-was supposed to be this week but is postponed due to a crummy sleep study. I'm going to try to have a swallow study done since he hasn't had one in a while, but any suggestions on getting him interested???? He has a speech therapist that comes to our home once a month, but she's had no luck either. He has gerd and was recently put back on prevacid, so his vomitting has slowed. I thought that might be one factor contributing to his fear of eating.
I just feel defeated. He really doesn't know what to do with solids in his mouth, he will either accidently swallow and gag and throw it up, or instantly spit it out. Friends, family, strangers, tell us to try sweets and that to get his interest, but taste is not a major factor when you have oral-sensory and motor issues.
Sorry so long....please respond if you've had a similar experience and found that something has worked. I know we all go through feeding issues,
so I know I shouldn't feel alone, it is just tough. Thank you
Katie
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