Posted by Olivia
on 7/12/2009, 3:50 pm
76.172.108.39
Has anyone had any experience with their children and developmental delay due to low tone? Both of my girls have Pierre Robin, but my younger daughter, now 2, has low tone and developmental delay. She does physical therapy twice a week, occupational therapy 3 times a week. She's making progress, but none of her therapists have ever seen Pierre Robin before, and I guess they don't know what to expect, and neither do I. Will she catch up -- is the big mystery. And obviously only she will determine that as she grows. I wonder if anyone else has had a similar experience, perhaps with an older child? Thanks!
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