Posted by Georgette Couvall
on 6/23/2009, 7:37 pm, in reply to "Re: prs, "
76.16.71.198
Dear Anita,
Hello. This is Georgette Couvall again and
I'm one of Dr. Salyer's (http://www.worldcf.org)
patients. Here are my Personal Story links:
http://www.worldcf.org/our-kids/georgette-couvall/
http://www.worldcf.org/family-care/support-groups
(Craniofacial anomalies)
How are you? I hope you are doing well.
Did you get a chance to read the email that I
sent you with all the medical information?
Also, here is a link that shows a picture of
one of my Craniofacial/Cleft Surgeon's
(Dr. Salyer) patients with Pierre Robin Syndrome
who he has operated on:
http://www.worldcf.org/medical-info/craniofacial-resources/pierre-robin-syndrome/
Again, if you need me to send you another email
with the medical information that I sent you
before, please let me know and I'll do this.
Sincerely,
Georgette Couvall
georgettecouvall@hotmail.com (Email)
--Previous Message--
: thank you so much for your respons! j will
: read the mail and get back to you!! thank
: you!
: best regards
: anita
:
: --Previous Message--
: Dear Anita,
: Hello. My name is Georgette Couvall and I'm
: one of Dr. Salyer's (http://www.worldcf.org)
: patients.
: Here are my Personal Story links:
:
:
:
: http://www.worldcf.org/our-kids/georgette-couvall/
:
:
: http://www.worldcf.org/family-care/support-groups
: (Craniofacial anomalies)
:
: I want to let you know that I sent you an
: email
: with some medical information that will
: probably
: be helpful to you for your daughter.
:
: Please email me at
: georgettecouvall@hotmail.com
: so that we can talk about this further.
:
: I look forward to hearing from you soon.
:
: Sincerely,
:
: Georgette Couvall
: georgettecouvall@hotmail.com (Email)
:
: --Previous Message--
: thank you for this great site!J think its so
: good that there is a page like this, and
: know j felt ready to right a mail myself...
: J have a baby-girl, and she is now 8 months
: old. She was born with prs,and we didnt know
: anything about it. When she was born, and
: the time after, j have searched all over the
: net, trying to find some information about
: it. The information have been so bad form
: the hospital and doctors. They know so
: little about this condition. l live i Norway
: and maybe the information is better in other
: contries. She absolutely has her struggles
: know, but its her future j am most consurned
: about. Does any of you know how the prs
: children will be at the age of 10, 20 etc? J
: understand that they are all different, but
: it would be so good to hear some
: "future stories". Will everything
: be allright in the end, or will most og them
: have some "issues"?
: I hope you can forgive me my bad english,
: but j hope you understand what i am
: saying...
: J will be really thankful for all your
: respons.
: best regards anita
:
:
:
:
:
:
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