Posted by Andrea on 6/22/2009, 5:31 pm, in reply to "prs, "
My son is 8 now. He has gone through so much. He had a trach, feeding tube, cleft palate etc. His palate was repaired at 9months old. d He also had rib graph and jaw distration in order to have his trach removed at 3 yrs old. He had no verbal speech before that. He is 8 now and like a normal 3rd grader. No educational problems or speech. It was a long road but worth it. IT does get better.
: thank you for this great site!J think its so
: good that there is a page like this, and
: know j felt ready to right a mail myself...
: J have a baby-girl, and she is now 8 months
: old. She was born with prs,and we didnt know
: anything about it. When she was born, and
: the time after, j have searched all over the
: net, trying to find some information about
: it. The information have been so bad form
: the hospital and doctors. They know so
: little about this condition. l live i Norway
: and maybe the information is better in other
: contries. She absolutely has her struggles
: know, but its her future j am most consurned
: about. Does any of you know how the prs
: children will be at the age of 10, 20 etc? J
: understand that they are all different, but
: it would be so good to hear some
: "future stories". Will everything
: be allright in the end, or will most og them
: have some "issues"?
: I hope you can forgive me my bad english,
: but j hope you understand what i am
: J will be really thankful for all your
: best regards anita
- prs, - anita 6/15/2009, 3:11 am
- Re: prs, - Andrea 6/22/2009, 5:31 pm
- Re: prs, - Georgette Couvall 6/15/2009, 7:40 pm
- Re: prs, - anita 6/16/2009, 1:53 am
- Re: prs, - Georgette Couvall 6/23/2009, 7:37 pm
« Back to index