Hello. My name is Georgette Couvall and I'm one of Dr. Salyer's (http://www.worldcf.org) patients.
Here are my Personal Story links:
http://www.worldcf.org/family-care/support-groups (Craniofacial anomalies)
I want to let you know that I sent you an email
with some medical information that will probably
be helpful to you for your daughter.
Please email me at firstname.lastname@example.org
so that we can talk about this further.
I look forward to hearing from you soon.
: thank you for this great site!J think its so
: good that there is a page like this, and
: know j felt ready to right a mail myself...
: J have a baby-girl, and she is now 8 months
: old. She was born with prs,and we didnt know
: anything about it. When she was born, and
: the time after, j have searched all over the
: net, trying to find some information about
: it. The information have been so bad form
: the hospital and doctors. They know so
: little about this condition. l live i Norway
: and maybe the information is better in other
: contries. She absolutely has her struggles
: know, but its her future j am most consurned
: about. Does any of you know how the prs
: children will be at the age of 10, 20 etc? J
: understand that they are all different, but
: it would be so good to hear some
: "future stories". Will everything
: be allright in the end, or will most og them
: have some "issues"?
: I hope you can forgive me my bad english,
: but j hope you understand what i am
: J will be really thankful for all your
: best regards anita
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