Hello. My name is Georgette Couvall and I'm one of Dr. Salyer's (http://www.worldcf.org) patients.
Here are my Personal Story links:
http://www.worldcf.org/family-care/support-groups (Craniofacial anomalies)
I want to let you know that I sent you an email
with some medical information that will probably
be helpful to you for your daughter.
Please email me at email@example.com
so that we can talk about this further.
I look forward to hearing from you soon.
: thank you for this great site!J think its so
: good that there is a page like this, and
: know j felt ready to right a mail myself...
: J have a baby-girl, and she is now 8 months
: old. She was born with prs,and we didnt know
: anything about it. When she was born, and
: the time after, j have searched all over the
: net, trying to find some information about
: it. The information have been so bad form
: the hospital and doctors. They know so
: little about this condition. l live i Norway
: and maybe the information is better in other
: contries. She absolutely has her struggles
: know, but its her future j am most consurned
: about. Does any of you know how the prs
: children will be at the age of 10, 20 etc? J
: understand that they are all different, but
: it would be so good to hear some
: "future stories". Will everything
: be allright in the end, or will most og them
: have some "issues"?
: I hope you can forgive me my bad english,
: but j hope you understand what i am
: J will be really thankful for all your
: best regards anita
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.