thank you for this great site!J think its so good that there is a page like this, and know j felt ready to right a mail myself... J have a baby-girl, and she is now 8 months old. She was born with prs,and we didnt know anything about it. When she was born, and the time after, j have searched all over the net, trying to find some information about it. The information have been so bad form the hospital and doctors. They know so little about this condition. l live i Norway and maybe the information is better in other contries. She absolutely has her struggles know, but its her future j am most consurned about. Does any of you know how the prs children will be at the age of 10, 20 etc? J understand that they are all different, but it would be so good to hear some "future stories". Will everything be allright in the end, or will most og them have some "issues"?
I hope you can forgive me my bad english, but j hope you understand what i am saying...
J will be really thankful for all your respons.
best regards anita
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