Posted by Jennifer E.
on 6/7/2009, 9:49 am, in reply to "Re: Post-palate repair--swollen tongue"
71.206.105.176
Thanks for your response Kristy. Unfortunately the swelling has not gone down at all (it's been almost 2 weeks), so the doctors are planning to take her back into the OR. They are considering starting jaw distraction to make more room for the tongue and to help us get rid of the trach. Currently her mouth/jaw/teeth are acting as a tournaquette on her tongue which is hindering it from healing and reducing the swelling. We are a bit overwhelmed, but praying for a good outcome.
--Previous Message--
: Has your daughter's swelling gone down some
: today? I know my daughter had some swelling
: and it took a few days for it to go down.
: She also had a trach and feeding tube.
:
: Hope her recovering is beginning to go
: smoothly.
:
: Kristy (mom to Bailee, 9 years, PRS, asthma,
: 22q11.2 distal deletion syndrome...Caroline,
: 6 years, 22q11.2 distal deletion
: syndrome....Landon, 23 months, 22q11.2
: distal deletion syndrome, g-tube)
:
: --Previous Message--
: My daughter had her palate repaired 11 days
: ago and her tongue is EXTEMELY swollen. Her
: mouth is stretched to the max and her tongue
: is hanging out several inches. We were able
: to get a feeding tube in and she has a
: trach, so the immediate concerns of
: breathing and feeding are addressed.
: However, the swelling does not seems to be
: going down and I'm just wondering how many
: other parents have had exteme swelling. How
: long did the swelling take to go down. My
: daughter is extremely uncomfortable and her
: jaw is aching because she cannot close her
: mouth.
:
:
:
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