Posted by Aubrey
on 6/2/2009, 10:05 am
63.71.65.210
My son is just over 4 months and was born with PRS. Like many of you, we were completely taken off guard and ill prepared. Unfortunately, we also had an ill prepared hospital! I explored this website after the initial diagnosis but was so overwhelmed all the information was terryifying. I decided to look again today and have found myself in tears reading and relating to all of these posts! Thank you to everyone for sharing-what may have been the hardest experiences of life thus far!
Owen currenlty has an NG tube and will continue to for at least a couple more months. As he's growing it's trickier to keep him from pulling it out! Any suggestions? Also, we will be experimenting with cereal in the next couple of months......should I expect difficulty?
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