Pierre Robin Network Message Central: Re: 2 year old passed away

Pierre Robin Network Message Central
[ Post a Response | Pierre Robin Network Message Central ]

Re: 2 year old passed away

Posted by Tanja on 5/17/2009, 11:19 pm, in reply to "2 year old passed away"
84.192.212.41

First of all my concondolences Maryanne.
Loosing your child is the thoughest anyone can experience. I wish you and your family a lot of strenght.
Our son (almost 4) with PRS also has got severe obstructive sleep apnoa. He also pulls of his c-pap mask. Therefore his doctors decided to put on arm restraints and put him in a special made sleepingbag so he will keep on his mask. It's a struggle every evening, but when I read your message now I'm glad that we are doing it this way. He's also on a monitor so we can hear and see if something goes wrong.
God bless you.

--Previous Message--
: I haven't posted in a while, but my precious
: Grandduughter, Cassidy passed away on
: 4/6/09. Besides PRS, she had severe
: obstructive sleep apnea. If any of you
: parents have a child with sleep apnea please
: make the doctor's do something about it.
: Cassidy would not keep on the cpap mask. She
: took it off all night long. No matter how
: many times we put it on, when we went to
: sleep it was off again. God Bless all of
: you. We miss our angel sooooo much.
:

Message Thread | Skip to this response ↓

2 year old passed away - Maryanne 5/8/2009, 11:32 am
- Re: 2 year old passed away - Adrienne 8/27/2009, 7:32 am
  - bromine tablets - othestlor 4/11/2012, 3:35 am
  - buy neopoints - ZacharyG14 4/9/2012, 2:12 pm
  - chlorine tablets - othestlor 4/9/2012, 2:00 am
  - smallest tablet pc - othestlor 4/9/2012, 1:42 am
  - YIEShqEzocoeKHHydLb - rnwrhhdpas 4/6/2012, 3:59 am
  - vEnTtgnHwPiuyQFPmi - doxycycline 3/27/2012, 4:10 pm
  - PTLpZAedcvx - lipitor 3/27/2012, 6:44 am
  - pqbxsShEUIsjSpuWP - nexium 3/27/2012, 2:55 am
  - xQTpNKrwhUPTD - viagra soft tabs 30 pills 3/12/2012, 9:34 pm
  - South-East Asia Several steps - easto 3/8/2012, 4:58 pm
  - Beremenost - Zueaykenik 3/5/2012, 3:26 am
  - promo code for famous footwear - othestlor 2/26/2012, 11:52 pm
  - privetctvuet - Alinmandovna 2/21/2012, 3:53 am
  - vgNNoMvyBarwP - diflucan thrush 2/19/2012, 12:16 pm
  - xFcZFAMNnTmvZL - name 2/12/2012, 7:07 am
  - iPXxnnFERjnHRYaXBjL - name 2/12/2012, 4:38 am
  - bxpVPUjuFoAZy - name 2/12/2012, 2:14 am
  - rkbGABbZQnpTgLOQ - name 2/11/2012, 11:59 pm
  - scLbeqxwBPOPKy - name 2/11/2012, 9:49 pm
  - IvuQJhEiQsZBUmCfd - name 2/11/2012, 7:43 pm
  - OaeSasTHCneDHEk - CWIbxYkqZ 2/7/2012, 4:59 am
  - PgxhhDwCLgq - qMNCrqZhHThEnw 2/7/2012, 1:06 am
  - KqLvovCynjdZvyxV - XPmgEycZUmnwMToTn 2/6/2012, 9:07 pm
  - tHMFEOleaxf - HIjdCxixhyfPDjnWbbV 2/6/2012, 5:17 pm
  - Will be glad to share with you these URL's - Dayperwampima 1/28/2012, 5:10 am
  - Will be glad to share with you these URL's - Dayperwampima 1/19/2012, 9:53 pm
  - Where download XRumer 7.0.10 ELITE?? - Natashagog 1/19/2012, 4:51 am
  - dith-hibre proposal - dith-hibre 1/18/2012, 12:21 pm
  - Test, just a test - XRumerTest 1/13/2012, 3:43 pm
  - Follow me :) Twitter Äàâàéòå îáìåíèâàòüñÿ - GilbertoFX 1/11/2012, 12:18 am
  - Follow me :) Twitter - GilbertoFX 1/9/2012, 9:02 am
  - Çíàê Çîäèàêà Ðàê 2012 - ãîðîñêîï ñîâìåñòèìîñòè áåññïëàòíî - DedMorozzz 1/3/2012, 10:41 am
  - infraud blog - ingeceInhinia 1/3/2012, 2:01 am
  - When you are remodeling your home, you may wonder what type of pipe fitting is going to work best for you - staillafluh 12/22/2011, 12:04 pm
  - WIkSlRqZGmwRwqCHG - ryxuuwbhb 12/16/2011, 6:47 am
  - Free video - magariu 12/7/2011, 3:16 pm
  - Free downloads - magariu 12/7/2011, 1:35 pm
  - Expired Domain Names - Dutreuche 12/6/2011, 7:02 pm
  - shopping - Jefoffibiamen 12/1/2011, 11:44 am
  - Forgen dating free. Totally free dating online. - PoothTopDooro 12/1/2011, 11:19 am
    - AXwRltbCfzIHitybl - tadacip 4/29/2012, 11:00 am
    - lgDiMsbOBpPVvpB - kamagra 4/27/2012, 10:55 pm
    - WWeatgXiBrFsqPNbXjz - suhagra 4/27/2012, 8:38 am
    - ROqxaJBvHUesB - eriacta 4/26/2012, 6:53 pm
    - nBEUvRBiofTIwda - tadacip 4/9/2012, 8:03 pm
    - mtfKQIeJyNpMLHVb - kamagra 4/6/2012, 6:08 pm
    - pKVKWtSYfPyHHDcEsK - eriacta 4/5/2012, 7:07 pm
    - uBsImIzmPjeaZctgBE - caverta 4/4/2012, 1:51 pm
    - BgQfVvSSdJaSgiI - apcalis 4/4/2012, 2:52 am
    - DfHmNmEfUG - jlqzarca 3/28/2012, 3:19 pm
  - Totally free dating site in norway. Dating faxon. - geabeleab 12/1/2011, 10:51 am
  - No sign up dating service. Dating withamsville. - Unmanibubpand 12/1/2011, 10:39 am
  - Dating clasified. Az dating age laws. - MouborbAcerve 11/30/2011, 5:45 pm
  - Re: 2 year old passed away - Maryanne 8/27/2009, 8:51 am
- helb me - abody 8/13/2009, 10:28 pm
  - Re: helb me - Maryanne 8/14/2009, 4:22 am
- Re: 2 year old passed away - genaveve 7/12/2009, 1:36 am
  - Re: 2 year old passed away - Maryanne 7/13/2009, 4:34 am
    - Re: 2 year old passed away - genaveve 7/13/2009, 10:23 pm
      - Re: 2 year old passed away - MARYANNE 7/14/2009, 4:38 am
        
        Re: 2 year old passed away - genaveve 7/18/2009, 9:26 pm
- Re: 2 year old passed away - Rene' 5/27/2009, 8:24 pm
- Re: 2 year old passed away - Tanja 5/17/2009, 11:19 pm
- blaze12months - kristy 5/16/2009, 9:40 am
  - Re: blaze12months - Maryanne 5/20/2009, 6:57 am
    - Re: blaze12months - Maryanne 5/20/2009, 7:00 am
      - Re: blaze12months - genaveve 7/12/2009, 1:30 am
« Back to index

Post a Response

Your Name:

Your Email:

Subject:

Message:

--Previous Message-- : First of all my concondolences Maryanne. : Loosing your child is the thoughest anyone : can experience. I wish you and your family : a lot of strenght. : Our son (almost 4) with PRS also has got : severe obstructive sleep apnoa. He also : pulls of his c-pap mask. Therefore his : doctors decided to put on arm restraints and : put him in a special made sleepingbag so he : will keep on his mask. It's a struggle : every evening, but when I read your message : now I'm glad that we are doing it this way. : He's also on a monitor so we can hear and : see if something goes wrong. : God bless you. : : --Previous Message-- : I haven't posted in a while, but my precious : Grandduughter, Cassidy passed away on : 4/6/09. Besides PRS, she had severe : obstructive sleep apnea. If any of you : parents have a child with sleep apnea please : make the doctor's do something about it. : Cassidy would not keep on the cpap mask. She : took it off all night long. No matter how : many times we put it on, when we went to : sleep it was off again. God Bless all of : you. We miss our angel sooooo much. : : :

Notify me by email of all message replies.

Please enter the numbers above. This helps stop spam.

By posting, you confirm that you have read and agreed to be bound by the board's usage terms.

If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.

Hosted for FREE by Boardhost.
Create your own free message board!