Posted by Tanja
on 5/17/2009, 11:19 pm, in reply to "2 year old passed away"
84.192.212.41
First of all my concondolences Maryanne.
Loosing your child is the thoughest anyone can experience. I wish you and your family a lot of strenght.
Our son (almost 4) with PRS also has got severe obstructive sleep apnoa. He also pulls of his c-pap mask. Therefore his doctors decided to put on arm restraints and put him in a special made sleepingbag so he will keep on his mask. It's a struggle every evening, but when I read your message now I'm glad that we are doing it this way. He's also on a monitor so we can hear and see if something goes wrong.
God bless you.
--Previous Message--
: I haven't posted in a while, but my precious
: Grandduughter, Cassidy passed away on
: 4/6/09. Besides PRS, she had severe
: obstructive sleep apnea. If any of you
: parents have a child with sleep apnea please
: make the doctor's do something about it.
: Cassidy would not keep on the cpap mask. She
: took it off all night long. No matter how
: many times we put it on, when we went to
: sleep it was off again. God Bless all of
: you. We miss our angel sooooo much.
:
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