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Re: Charge syndrome

Posted by dorreen on 5/2/2009, 8:56 am, in reply to "Re: Charge syndrome"
96.248.25.187

my son is 10 months old and has PRS and clinical diagnosis of Charge Syndrome based on his physical features. he had the CHd7 test done and it came back normal. please if you could email me i would love to talk to you.
--Previous Message--
: Yes thank you as much info that I can get I do
: appreciate it. All the doctor said was this
: is what he thinks. He didnt give any info.I
: have been checking it on the internet. You
: would think Doctors could be a little more
: understanding to what families are going
: through.Deb
:
: --Previous Message--
:
: Hi, I don't know much about Charge, however
: the baby that was in the NICU with my son,
: he had Charge and I would be more then happy
: to give you his mom's info (wiht her knowing
: of course) and she has become quit informed
: about this condition.
:
: --Previous Message--
: My granddaughter went to a new doctor today.
: She does have PRS she is 9 months old. But
: now this doctor said he thinks she has
: Charge syndrome. Does anyone know about
: this. Thank You Deb
:
:
:
:
:

Message Thread:

Charge syndrome - Deb 4/23/2009, 9:35 pm
- Re: Charge syndrome - h 4/24/2009, 9:09 am
- Re: Charge syndrome - dee 4/24/2009, 5:50 am
  - Re: Charge syndrome - Debbie 4/24/2009, 6:03 pm
    - Re: Charge syndrome - dorreen 5/2/2009, 8:56 am
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--Previous Message-- : : my son is 10 months old and has PRS and : clinical diagnosis of Charge Syndrome based : on his physical features. he had the CHd7 : test done and it came back normal. please if : you could email me i would love to talk to : you. : --Previous Message-- : Yes thank you as much info that I can get I : do : appreciate it. All the doctor said was this : is what he thinks. He didnt give any info.I : have been checking it on the internet. You : would think Doctors could be a little more : understanding to what families are going : through.Deb : : --Previous Message-- : : Hi, I don't know much about Charge, however : the baby that was in the NICU with my son, : he had Charge and I would be more then happy : to give you his mom's info (wiht her knowing : of course) and she has become quit informed : about this condition. : : --Previous Message-- : My granddaughter went to a new doctor today. : She does have PRS she is 9 months old. But : now this doctor said he thinks she has : Charge syndrome. Does anyone know about : this. Thank You Deb : : : : : : :

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