Posted by Linda on 4/29/2009, 9:58 am, in reply to "More Feeding concerns"
65.23.55.130
When my son had the g-tube I began to feel like it was me vs gtube and it consumed me. From my own experience this is the advice can give you... If the gtube were to be removed prematurely it would only make your worry about your child receiving enough nourishment that much worse, you would hate to need a second surgery to have it replaced. The more frustrated you get while attempting to feed may just upset your baby more and make the situation worse. Looking back I wish I had approached the situation as "today we are going to hopefully get in x amount orally, anything left will go via gtube, no big deal". The tube can stay for a long time even after it is no longer being used. Keeping it in for now will really help you for the time being. Try to relax and realize that it will come out eventually. My son became very orally defensive and wouln't eat anything by mouth until he was over a year old and the tube came out when he was 18 mos. You are doing way better then we did so congratulations!!!! It'll come just try to be patient. Good Luck! Linda--Previous Message--
: Thanks everyone for your responses to my other
: post. I have more questions. Or maybe I
: just need some encouragement.
:
: These feeding issues make me feel so lost.
: It's so time consuming every day to find
: time to pump enough to increase my supply,
: try to feed Alana from the haberman bottle
: and, finish up what she doesn't eat through
: the g-tube.
:
: I'm so determined for her to eat completely
: by mouth so we can get this g-button out. Is
: this a realistic goal? They said it was our
: goal when we were discharged. I have no
: idea how long it's going to take for her to
: be able to eat completely by mouth though.
: Weeks? Months? She's getting 30ml now out
: of the haberman......a couple weeks ago she
: could only get 10ml or less. I wonder if
: there is something we could be doing to get
: better at this? Or does it just take
: time/growth. I haven't tried any other
: bottles except the haberman. And I'm so
: worried that she is getting enough to eat
: and is gaining weight. She is still so tiny
: and I want her to grow so her jaw will grow.
: But the docs say she will probably burn
: extra calories working hard to eat. And
: she's been spitting up a little bit too. Not
: sure if she is getting to much air while
: eating, or air while being fed through the
: g-button, or if it's reflux. Or maybe we are
: overfeeding her since she is not in control
: of how much she is eating?
:
: We do follow up next week with our ENT and
: SLP, so I will be asking the same things.
:
:
:
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