Thanks everyone for your responses to my other post. I have more questions. Or maybe I just need some encouragement.
These feeding issues make me feel so lost. It's so time consuming every day to find time to pump enough to increase my supply, try to feed Alana from the haberman bottle and, finish up what she doesn't eat through the g-tube.
I'm so determined for her to eat completely by mouth so we can get this g-button out. Is this a realistic goal? They said it was our goal when we were discharged. I have no idea how long it's going to take for her to be able to eat completely by mouth though. Weeks? Months? She's getting 30ml now out of the haberman......a couple weeks ago she could only get 10ml or less. I wonder if there is something we could be doing to get better at this? Or does it just take time/growth. I haven't tried any other bottles except the haberman. And I'm so worried that she is getting enough to eat and is gaining weight. She is still so tiny and I want her to grow so her jaw will grow. But the docs say she will probably burn extra calories working hard to eat. And she's been spitting up a little bit too. Not sure if she is getting to much air while eating, or air while being fed through the g-button, or if it's reflux. Or maybe we are overfeeding her since she is not in control of how much she is eating?
We do follow up next week with our ENT and SLP, so I will be asking the same things.
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