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Re: Charge syndrome

Posted by Debbie on 4/24/2009, 6:03 pm, in reply to "Re: Charge syndrome"
76.236.41.143

Yes thank you as much info that I can get I do appreciate it. All the doctor said was this is what he thinks. He didnt give any info.I have been checking it on the internet. You would think Doctors could be a little more understanding to what families are going through.Deb

--Previous Message--
:
: Hi, I don't know much about Charge, however
: the baby that was in the NICU with my son,
: he had Charge and I would be more then happy
: to give you his mom's info (wiht her knowing
: of course) and she has become quit informed
: about this condition.
:
: --Previous Message--
: My granddaughter went to a new doctor today.
: She does have PRS she is 9 months old. But
: now this doctor said he thinks she has
: Charge syndrome. Does anyone know about
: this. Thank You Deb
:
:
:

Message Thread:

Charge syndrome - Deb 4/23/2009, 9:35 pm
- Re: Charge syndrome - h 4/24/2009, 9:09 am
- Re: Charge syndrome - dee 4/24/2009, 5:50 am
  - Re: Charge syndrome - Debbie 4/24/2009, 6:03 pm
    - Re: Charge syndrome - dorreen 5/2/2009, 8:56 am
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--Previous Message-- : Yes thank you as much info that I can get I do : appreciate it. All the doctor said was this : is what he thinks. He didnt give any info.I : have been checking it on the internet. You : would think Doctors could be a little more : understanding to what families are going : through.Deb : : --Previous Message-- : : Hi, I don't know much about Charge, however : the baby that was in the NICU with my son, : he had Charge and I would be more then happy : to give you his mom's info (wiht her knowing : of course) and she has become quit informed : about this condition. : : --Previous Message-- : My granddaughter went to a new doctor today. : She does have PRS she is 9 months old. But : now this doctor said he thinks she has : Charge syndrome. Does anyone know about : this. Thank You Deb : : : : :

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