Posted by Katie
on 2/20/2009, 8:23 pm
98.206.53.35
Hey everyone!
Wanted to see if any of you had the same issues dealing with speech and GI clinic with tube feedings. My son is 6 mos and still almost strictly g tube fed. i know complete transition to oral feeds takes some time but im getting kind of nervous, bc since birth its actually gotten worse. He used to take 1-2 ounces via haberman and the rest tube but now hes only getting "tastes" of baby food and just plays with the bottle. Speech thinks he is not sensing hunger bc he eats every 3, but the pump runs about 45 min so really hes getting food every 2.25 hr. So i guess that means he doesnt associate food with filling up?
So then comes the problem with GI and the dietician. He gets 24 cal 3.5 oz every 3 and they dont want him to wait til 4-5hrs. Plus he still eating (gtube only) twice in the night! I begged to cut out the third about 6 weeks ago and they did give in. They said they will do a weight check soon and then decide whats best. I believe hes at a healthy weight (17, almost too healthy), although he did lose for a while in his early weeks. I want whats best for him nutrionally but i think oral motor skills are very important and hes just not getting it!!! 
any suggestions/experiences/advice
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