Posted by holly
on 12/9/2008, 6:15 am, in reply to "bottles"
68.58.169.12
Hey Katie...sorry that you are having trouble with feeding your little one. I don't have much experience with the whole tube feeding/oral aversion thing, but i tried every bottle out there for feeding Kate. I hate to think how much i spent! What brand of binki does he use? Does he suck on it a lot? Kate always did well with the gerber soft center pacifier. Kate used a mini haberman for the first 5 1/2- 6 months. She refused the regular sized one. The regular one i think was too long and would put the milk right into her cleft and make her feel like she was choking. I just now at eight months can get her to use either one. Have you tried a mead johnson nurser? You can get some gerber bottles from walmart or whatever that are really small and then make the hole just a little larger and put it on the the mj nurser bottle so that you can squeeze it for him. I have some new mini habermans and could swipe you a mead johnson nurser from work if you want to try them. I know all of this can be frustrating. I thanked the lord every day that Kate didn't have the struggles with feeding that most prs and cleft babies do. It will get better and it sound like you are doing all the right things for you little baby. Email me if you want me to send you those bottles to try....good luck!
--Previous Message--
: This might be a strange question but im still
: getting used to all that comes with
: PRS/cleft palate. My son, Dustyn, is 4
: months now and has never done very well with
: feeding. He used to take about an ounce with
: the habermann before g tube was placed, but
: doesnt take much now. Actually just little
: drops, and i think its because he gets
: really overwhelmed by the nipple of that
: bottle. He instantly gags on it almost
: everytime and sometimes gets all red until
: he throws up. We've had such a tough time
: with it and have seen multiple
: speech/feeding speacialists. One even told
: us to spoon feed formula(not even w/ rice).
: I guess the point is not to accomplish
: volume, but to get him used to getting full
: from oral stimulation and taste, and not be
: strictly g tube fed. So to get to my
: question, have any of you tried to use a
: regular bottle(prior to palate surgery)???
: if so how did it work for you??? ive tried
: it just to see bc the nipple is shorter and
: just like his gumdrop binki and he manages
: to suck some out, his problem has just
: always been swallowing... i think ive
: rambled enough please PM with any
: experiences/advice?!?!
:
Message Thread:
« Back to thread