Posted by Lori
on 12/1/2008, 12:38 pm, in reply to "Re: Distraction surgery"
68.76.157.235
It has been a week and a half since my son's distraction surgery. In my opinion, it has been a complete miracle. He now has zero breathing issues and is able to lay on his back no problem. Now we have to tackle the feeding issue. So far he is only able to get a little bit out of the Haberman at each feeding. How long did it take before your child was able to feed exclusively from a bottle?
--Previous Message--
: Lori,
: My son is 6 months old and had his jaw
: distracted at 6 weeks of age. We chose this
: surgery because we could no longer control
: his choking episodes by repositioning him.
: If he was awake he was choking. The surgery
: and recovery were very scary and intense but
: it completely corrected his recessed chin
: and breathing issues. After the surgery he
: thrived and gained weight quickly. He leads
: a completely normal life now. Our ENT would
: only encourage this surgery if the child was
: having severe breathing and feeding
: problems. Please feel free to contact us if
: you have any questions.
:
: --Previous Message--
: My son was just diagnosed with PRS. He is
: three weeks old and was born six weeks
: premature. His doctor is scheduling
: distraction surgery for Friday to open his
: airway and help with his feeding issues.
: Any advice on what to expect after the
: surgery? We are just starting to gather
: information on PRS and distraction. Any
: personal experiences you are willing to
: share would be much appreciated!
:
:
:
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