Posted by Adrienne
on 11/27/2008, 7:10 pm, in reply to "Re: No gag, swallow, suck, what kind of brain damage"
4.89.129.62
My daughter is 7 months old and she is aspirating on her milk still, we have fed her through a ng feeding tube but are placing a g-tube soon, they are wonderful because they feed her, but they are a pain at times. As far as brain damage the best I can say is it is not reversable. There are different degrees of damage, so no one will likely be able to tell what kinda of lives they will live, time will tell. Good luck with everything, I will keep them in my prayer.
--Previous Message--
:
: Thank You Jennifer, that is very comforting
: to know. But things have not gotten any
: better. Mackenzie had to be bagged,
: Heather's heartrate dropped very low. Both
: were taken off the phenobarbitol but
: immediately had to be put back on because
: they immediately started having seizures.
: Also both are back on the respirator. The
: nurses tried to start giving Heather milk
: but she started to aspirate(?) so they
: stopped. Just please keep praying. And
: Thank you.
: --Previous Message--
: I will be praying for these special little
: bundles. I don't know much about brain
: damage, but let me assure you, a feeding
: tube is not the end of the world. My
: daughter has had one for 8 months and she is
: doing just fine. You also might want to
: check out Aaron's Tracheostomy Message
: Board. There are a lot of parents with
: special needs kids who are incredibly
: helpful. Hang in there and know that I will
: keep you in my prayers.
:
: --Previous Message--
: I happened upon this site as i have started
: to
: try and find answers to solutions for my
: neices. Baby Heather and Baby Mackenzie
: were delivered almost 20 minutes after their
: mother died from a blot clot thru the lungs.
: She coded as her husband and brother drove
: into the hospital parking lot, then the
: small hospital had to call an experienced
: labor dr to come to the hospital, which is
: 10 minutes away. The nurses continued to
: deliver air to the babies thru the mother.
: Both girls were delivered unresponsive and
: had to be revived. The girls were to be
: delivered this past Wednesday.(36wks) Both
: girls were on a respirator for two days.
: Heather has been off the respitator since
: tue, Mackenzie has been taken of and put
: back on twice. The girls have been on
: Phenobarbital and another drug since they
: have been having seizures. Mackenzie's have
: been worse than Heather's. Neither have had
: a seizure for the past 3 days. I know that
: this is because of the seizure medicine. A
: cat scan came back negative, but after a
: week neither girls are active. They do move
: a little and will open their eyes but have
: yet to cry. Their lungs, liver, heart, and
: kidneys are fine. Sunday they were a week
: old. The nurses started to try and feed
: Heather a bottle, but she would not suck,
: swallow and has no gag reflex. The same is
: for Mackenzie. The nurses told us that this
: is a sign of brain damage. Mackenzie is
: urinating a lot more than Heather. The nurse
: said this is also another sign of brain
: damage. Tomorrow they are going to stop the
: seizure medicine then after a few days do
: another cat scan to find out how much brain
: damage there actually is. The nurses did
: tell us that if they could not teach the
: babies how to eat they would put in a
: feeding tube. Will the girls be able to
: have any kind of seminormal life with a
: feeding tube? Is there any way to repair
: the brain damage? What kind of life can the
: girls have. What are good sites to get
: information to learn how to care for
: children with disabilities like what we are
: facing? Knowledge is power and I want all
: the knowledge i can get on this situation.
: I have put the girls in God's hands and will
: deal with whatever decision he has for them.
: But until he decides I am getting all the
: info i can print out. Thanks in advance for
: any advice and help. Please pray for these
: beautiful babies.
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