Posted by Laurel
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on 11/25/2008, 6:58 pm, in reply to "Ava"
121.216.8.208
Hi, My daughter, Olivia, was diagnosed with PRS soon after birth July 29th 2008. I am in Sydney too. I have been dealing with the childrens hospital at Randwick but I am about to go for another sleep study and second opinion at Westmead. We are finding it hard to get Olivia to tolerate her CPAP.It sounds like Ava is doing much better since starting with the CPAP. We are lucky in that Olivia has been able to suck feed using a chu chu teat and she will be having her palate repaired at 9 months. Have you been in touch with cleptpals?
Laurel
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