Posted by Nicola on 7/17/2008, 3:36 am, in reply to "absent gag reflex"
121.221.109.39
Hi there, We have a little baby Lola with the same symptoms as ypur Nina. She has a small receding chin with no gag, suck or swallow reflex. I would be really interested to know what your doctors are saying and what her prognosis is. Did you have a normal pregnancy? to full term? Just wanting to know someone in a similar situation.
--Previous Message--
: Hi there,
:
: We have just had our beautiful Nina born to
: us. ALthough she hasnt been diagnosed with
: PRS she has similar difficulties, high
: arched palate (but not cleft palate), small
: receding chin, absent gag reflex and
: difficulty swallowing and sucking. Her
: inability to swallow her secretions means
: that she must be constantly suctioned as
: these clog up her air passage way and is on
: a constant pressure air support system,
: whilst asleep. Is there anyone out there
: who was a child with similar dificulties,
: namely inability/difficulty to swallow, suck
: and absent gag reflex? COuld anyone tell us
: avenues of treatment and what to expect in
: the future? We have been staying at
: sydney's westmead childrens hospital for
: exactly 3 weeks today. Best REgards, Nina,
: Claudia and Nils
:
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