Posted by fran on 7/13/2008, 10:03 pm, in reply to "New mom of baby with PRS"
121.222.24.17
hi jenn,my daughter had a little boy on the10/7/08 with prs.it seems you will be going through a similiar experience at the same time.hamish also has the` small jaw` with a cleft palate in the soft tissue.the only difference being he did well with his hearing test.i would love my daughter to have contact with you via this chat room when she comes out of hospital.i will tell her about you.cheers fran
--Previous Message--
: My baby girl was born 10 days ago and has been
: in the NICU ever since. She has a very small
: chin and cleft palate in the soft part of
: the roof of her mouth. Her tounge falls to
: the back of her mouth and blocks her airway
: so she has to always be on her stomach. We
: just got the results back from her hearing
: tests and they were not good. We're not sure
: of all the details but they are pretty sure
: she has severe hearing loss. I'm looking to
: connect with other parents that have a child
: with these same issues. I live in the
: Washington, DC area. I would love to hear
: from anyone who is willing to chat with a
: scared mom and share their stories. We have
: no idea yet when we can bring our daughter
: home. She has to improve with breathing and
: feeding. She is able to take part feedings
: by the bottle and part through a feeding
: tube...we are using the Habbermen bottle. If
: anyone can share other resources and/or has
: any advice or stories for me, it would be
: most appreciated. Thank you.
:
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