Posted by Jenn on 7/12/2008, 2:47 pm
65.213.247.11
My baby girl was born 10 days ago and has been in the NICU ever since. She has a very small chin and cleft palate in the soft part of the roof of her mouth. Her tounge falls to the back of her mouth and blocks her airway so she has to always be on her stomach. We just got the results back from her hearing tests and they were not good. We're not sure of all the details but they are pretty sure she has severe hearing loss. I'm looking to connect with other parents that have a child with these same issues. I live in the Washington, DC area. I would love to hear from anyone who is willing to chat with a scared mom and share their stories. We have no idea yet when we can bring our daughter home. She has to improve with breathing and feeding. She is able to take part feedings by the bottle and part through a feeding tube...we are using the Habbermen bottle. If anyone can share other resources and/or has any advice or stories for me, it would be most appreciated. Thank you.
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