Posted by Karin on 7/10/2008, 10:48 am, in reply to "floppy epiglotis"
98.169.33.230
Hi there! Me, again. We were never told that, and I am not aware that Alex has it. He has craploads of other floppiness, but not that one.
I was told that general floppiness in the airway (which is what all children have to some degree when born) can push PRS kids over the edge into a trach. It is just one thing too many.
--Previous Message--
: ok maybe i missed something 11 months ago..but
: I am pretty darn sure I was not told my son
: had a floppy epiglotis and this was a
: definite part of prs!!! Well, this is now a
: problem in terms of decannulating! Was
: anyone else told this was a deft. sympton of
: "prs"? I googled it and it's
: mostly issues with adults and sleep apnea.
: I only had a few mins to talk to ent about
: that issue bc there were larger issues to
: discuss..so i let this one slip..we dont got
: back for a few weeks..so any insight info
: anything would be great!
: Thanks
:
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