Posted by Nancy on 6/24/2008, 12:51 pm, in reply to "Re: Books on PRS?"
68.10.142.195
Thank you for your help.
--Previous Message--
: I would doubt that you will find anything on
: PRS more than what is on the internet. But,
: based on your post, I'm not sure
: "PRS" is quite what you are
: looking for. PRS cannot cause poor eyesight
: or ADD. PRS is not a syndrome, nor a
: disease. It is a diagnosis given whenever
: three (sometimes two) factors are in place:
: 1 -- a receding chin (micrognathia), 2 -- a
: tongue that falls back over the airway, and
: 3 -- a u- or v-shaped cleft palate may or
: may not be present. No motor control issues
: or connective tissue disorders are
: considered "part" of the PRS.
:
: However, PRS can be caused by other
: syndromes, including Sticklers, which is a
: connective tissue disorder that can cause
: poor eyesight as well as retinal detachment.
:
: While some other "symptoms" tend
: to be found in PRS children, such as poor
: appetite and low tone, these symptoms are
: almost certainly a result of medical
: intervention, prolonged hospital stays, or
: other factors and not PRS.
:
: I hope this is helpful.
:
: --Previous Message--
: Hello,
: I was born 25 years ago with PRS. Back then,
: they didn't diagnose it and I went my entire
: life wondering where my (unusual looking)
: cleft palate came from, where my very poor
: eyesight came from and where my A.D.D. came
: from.
:
: This past February, my husband and I gave
: birth to our first child, our beautiful
: daughter, Emory. She was also born with PRS.
: It was then I learned about the birth defect
: that was such an enigma to me my entire life
: that my daughter had inherited from me.
:
: Now I want to learn everything I can about
: PRS. Wherever I look on the internet, I can
: only find limited descriptions and such. On
: Amazon, I can't find any books specifically
: about PRS. Can anyone point me in the right
: direction to obtain more literature specific
: to PRS?
:
: Thank you!!
:
:
:
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