Posted by Nancy on 6/23/2008, 11:54 pm
68.10.142.195
Hello,
I was born 25 years ago with PRS. Back then, they didn't diagnose it and I went my entire life wondering where my (unusual looking) cleft palate came from, where my very poor eyesight came from and where my A.D.D. came from.
This past February, my husband and I gave birth to our first child, our beautiful daughter, Emory. She was also born with PRS. It was then I learned about the birth defect that was such an enigma to me my entire life that my daughter had inherited from me.
Now I want to learn everything I can about PRS. Wherever I look on the internet, I can only find limited descriptions and such. On Amazon, I can't find any books specifically about PRS. Can anyone point me in the right direction to obtain more literature specific to PRS?
Thank you!!
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