Posted by Angela on 5/13/2008, 12:26 pm, in reply to "New Mom of PRS son"
72.76.37.40
Same happened here. I could only be with Kate in the NICU while my 5yr old was in school. I made sure they adjusted her feeding schedule for when I was there, so I could do it.
I know it's hard, and it really really sucks when you think you're having a healthy baby, and this happens. I just did what the docs told me to do, hoping for the best. After 2 1/2 weeks, dh and I were starting to feel like she was never leaving the hospital. A nurse told us they had a PRS baby who stayed there for 6 mos. In hindsight, I was glad she told us that, cause it made us get our butts in gear, and search out other alternatives. By 3 weeks old, we had her transfered to CHOP so we could get specialists involved and get a move on getting her home.
My best advice, be proactive. Learn everything you can, and try and figure out immediately whether Joe is getting the best possible care there, or a larger Children's hospital would be a better bet. For us, she ended up staying hospitalized for 7+ more weeks, but if we'd stayed in the other hospital, she'd still be there...they wouldn't release her with a feeding tube.
--Previous Message--
: May 3, 2008 I had a repeat c-section for my
: son Joe. That was when I was told he has
: PRS. They swiftly took him to the NICU and
: I was unable to see him for 7 hours. Today
: is May 13,2008 and he is still there. I
: don't know what to do? I'm scared bringing
: him home but I can't stand to be away from
: him. I'm home in the afternoon with my
: three year old and she is having a hard time
: with me leaving for his afternoon feedings.
: Can someone please get back to me and tell
: me something? I live in Illinois, is there
: some place I can go and talk to other
: moms/dads regarding this. My heart is
: aching, I can't spend hours at a time at
: the hospital with him because I have no baby
: sitter for my daughter. What can I do and
: where can I go.... THanks for listening.
:
: --Previous Message--
: I just want to let you new parent out there
: know that even though you seemed overwelmed
: right now things will get better. My
: daughter was diagnosed after she was born
: with PRS. We had no idea that there was
: anything "wrong" with our baby.
: We were told to expect a small baby because
: she was not growing very well but thats all
: we expected. Emma was born 6/9/05, 3lbs
: 11oz and 17 3/4in long. She was taken away
: 2min after she was born due to breathing
: problems. She was taken 8hrs later to
: another local hopital with breathing
: problems to be placed in the NICU, than a
: month later to a Childrens hopital where she
: was trached and had a gbutton placed. She
: came home at 3mo. I mas so overhelmed by
: all this but it did get easier day by day.
:
: Since then Emma had her pallet repaired and
: tubes placed, we had 4 gbuttons replaced,
: trach removed this past May, Gbutton and
: closure of both stomas 2 weeks ago. Emma
: has hit every mile stone at the appropriate
: age, she talked over her trach, she learned
: sign language and is a very smart and
: determined little girl. All from a little
: girl that the NICU Dr's said might not make
: it because she would stop breathing several
: times an hour, and if she did she would be
: delayed developmentally. I love to take her
: back to see those Dr.s now and say look you
: were wrong!!!! They are all amazed at her.
:
: So keep your chin up and treat your child
: like any other normal baby and have the same
: expextations for your child as you would
: your other children! I think that sometimes
: having lower expectations for your child can
: make them lag behind. Never give up and
: don;t be afraid to ask for 2nd and 3rd
: opinions! It all does get better and you
: are all in my thoughts and prayers.
:
: Check out emma and babiesonline.com Emma
: Martin born 6/9/05
:
: Thanks,
:
: Krista Martin very prod mom to
: Emma as she loves to say almost 3 and a true
: blessing
:
: and to Brianna 7 the worlds best big sister
:
:
:
Message Thread:
« Back to thread