Posted by Krista Martin on 5/6/2008, 9:35 am
68.88.99.200
I just want to let you new parent out there know that even though you seemed overwelmed right now things will get better. My daughter was diagnosed after she was born with PRS. We had no idea that there was anything "wrong" with our baby. We were told to expect a small baby because she was not growing very well but thats all we expected. Emma was born 6/9/05, 3lbs 11oz and 17 3/4in long. She was taken away 2min after she was born due to breathing problems. She was taken 8hrs later to another local hopital with breathing problems to be placed in the NICU, than a month later to a Childrens hopital where she was trached and had a gbutton placed. She came home at 3mo. I mas so overhelmed by all this but it did get easier day by day.
Since then Emma had her pallet repaired and tubes placed, we had 4 gbuttons replaced, trach removed this past May, Gbutton and closure of both stomas 2 weeks ago. Emma has hit every mile stone at the appropriate age, she talked over her trach, she learned sign language and is a very smart and determined little girl. All from a little girl that the NICU Dr's said might not make it because she would stop breathing several times an hour, and if she did she would be delayed developmentally. I love to take her back to see those Dr.s now and say look you were wrong!!!! They are all amazed at her.
So keep your chin up and treat your child like any other normal baby and have the same expextations for your child as you would your other children! I think that sometimes having lower expectations for your child can make them lag behind. Never give up and don;t be afraid to ask for 2nd and 3rd opinions! It all does get better and you are all in my thoughts and prayers.
Check out emma and babiesonline.com Emma Martin born 6/9/05
Thanks,
Krista Martin very prod mom to
Emma as she loves to say almost 3 and a true blessing
and to Brianna 7 the worlds best big sister
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