Posted by Stephanie on 5/2/2008, 10:55 am, in reply to "Hi..."
66.102.86.72
Hi! Welcome :0)
I have a 2 yr old with PRS and another condition called Larsen's Syndrome. Is your daughter experiencing any difficulties in relation to PRS? Hope she is doing well.
Best wishes, and congratulations on the birth of your baby girl.
Stephanie
--Previous Message--
: We just found out our 1 month old daughter has
: PRS and are feeling a little overwhelmed
: with all the info we have recieved in the
: last 2 days. I just wanted to stop in and
: say hi and introduce ourselves, as we will
: be coming here often for
: support/advice/info...
:
Message Thread:
![]()
« Back to thread
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.