Posted by steve on 4/29/2008, 2:58 am, in reply to "Re: Carson-5 weeks old w/PRS & cleft palate"
159.204.59.25
when he has an "episode" there is always some sort of discharge via mouth and/or nose of formula/mucus...so I'm pretty sure it isn't his tongue. The apnea test was while he was only on his back. The one thing that does bother me a bit is that he had no episodes while in the hospital...but he had all kinds of wires hooked up to him so we couldn't even hold him...but he pretty much stayed in the same position (on his back) the whole time. I mean maybe it is the movement or something like that that causes the "episodes"..?? Thanks Angela for your input...I really value others opinions. Have a good day.
Steve
--Previous Message--
:
: Are you sure his tongue isn't blocking his
: airway?? You mentioned a sleep apnea test,
: but when was that done? My daughter was fine
: positionally for 3 weeks and then started
: having issues...similar to what you
: describe. What was happening was her tongue
: would sort of get caught back there, and she
: didn't know how to get it out. When they did
: the sleep test, did he sleep in all
: positions, or just on his belly??
:
: Angela
: --Previous Message--
: Hello everyone, I just ran across this msg.
: board and I wanted to touch base with some
: people that may be able to help me thru some
: tough times and help me understand a few
: things. My wife and I spent the weekend in
: the hospital because my son Carson has these
: "episodes" where he appears that
: he is choking and can't catch his breath. He
: turn bright red, eyes water, he gets stiff
: and he waves his arms in what appers to be
: "desperation" to breathe. The Dr.
: told us that he thought it was reflux and
: during the hospital stay, he didn't have one
: episode. Now we have been home just one day
: and he is already starting them up again.
: The Dr. put Carson on Prevacid oral liquid
: for him to help with the reflux. He passed a
: 24 hour sleep apnea test with flying colors
: and everything else came up ok with his
: upper GI and other swallowing tests. Has
: anyone else ever heard of these
: "episodes"? They are VERY scary
: and most of the time we have to suction his
: nose and mouth out just for him to get air!
: Anything anyone can pass along would be
: helpful. Thanks for your time.
: Steve
:
:
:
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