Posted by Angela on 4/26/2008, 9:13 am, in reply to "Re: after repair: how many nights w/out sleep?"
72.76.37.40
Ha! Yes, the trach making a an open patent airway makes it a lot easier. And yup, I was very thankful for that feeding tube. Kate would probably STILL be in the hospital for not eating!!
Hang in there, it'll be over before you know it!
Angela
--Previous Message--
: I have been dreaming of a feeding tube lately!
: I can imagine that helps things
: considerably. We are doing the motrin
: around the clock, maybe I will add tylenol
: too. And unfortunately he has already gone
: for his mouth so I think the no-nos are here
: to stay. I can't imagine wanting to touch
: the war zone Jack has going on in his mouth
: but I guess he is just really oral!
:
: At least we don't have to worry about the
: swelling effecting his breathing, there are
: times I am thankful for the trach!
:
:
:
: --Previous Message--
: Jennifer, I don't even know what to tell
: you.
: Kate had a feeding tube, so we gave her meds
: and food all through the night the first
: week or so, so no need for her to wake. It
: does take a bit for the anesthesia to wear
: off, and he will certainly be missing his
: paci by now. We found Kate didn't want to
: put anything anywhere near her mouth, so we
: took the no-nos off by the second night.
:
: And you're right, the recovery is more
: brutal than you think it will be. If it were
: me, I'd be keeping him on Motrin around the
: clock, for the comfort factor. As long as
: you stay ahead of the pain, and medicate
: before it gets out of control, I think he
: should be feeling better in a few days.
:
: Good luck!
: Angela
:
: --Previous Message--
: Jackson's repair was on Tuesday, it went
: well
: and he is doing well medically but I will
: admit recovery is tougher than I expected.
: Last night was the 4th night post surgery
: and his longest stretch of sleep was a few
: one hour blocks, but more typically he will
: sleep 30 minutes and then need to eat, get
: pain meds, or be jiggled back to sleep
: (plain old rocking is not vigorous enough to
: calm him down). He doesn't seem to be in
: too much pain during the day and takes a few
: short naps, so I think the night-waking is
: due to the lost bottle and lovey, and the
: no-nos. And I think I read anesthesia
: disrupts sleep. We have tried holding him
: in recliner or in our bed and he still wakes
: all the time, we would have to physically
: rock all night and maybe he would sleep
: longer. I think we are going to do this in
: shifts tonight.
:
: What I am wondering is, when does this get
: better??? I expected to be sleep deprived,
: but it is getting pretty grueling so I am
: just looking for a time frame, so I can
: focus on the light at the end of the tunnel.
: Does it take a week to break the habit of
: past crutches such as pacis and bottles; or
: are we talking the full 3 weeks he has the
: no-nos on? Or longer? No need to sugar coat
: it, I am just trying to get a goal for my
: own sanity.
:
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