Pierre Robin Network Message Central: my girls

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my girls

Posted by judy on 4/23/2008, 11:38 am
70.186.217.144

Hi. I have 2 daughters. Miko was born with PRS in 1989. Loren was born 2 years later with no signs of PRS. We recently found out loren has fibrous dysplasia after a tumor that had grown to the size of a golf ball caused a break in her tibia. Both my girls have mild mental retardation.Does anyone have a PRS child with fibrous dysplasia?Could she have a related syndrome to PRS?

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my girls - judy 4/23/2008, 11:38 am
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--Previous Message-- : Hi. I have 2 daughters. Miko was born with PRS : in 1989. Loren was born 2 years later with : no signs of PRS. We recently found out : loren has fibrous dysplasia after a tumor : that had grown to the size of a golf ball : caused a break in her tibia. Both my girls : have mild mental retardation.Does anyone : have a PRS child with fibrous : dysplasia?Could she have a related syndrome : to PRS? :

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