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Re: Colapsed trachea

Posted by Angela on 4/21/2008, 10:34 am, in reply to "Colapsed trachea"
72.76.37.40

Hi Marni, you might find more information at this website:

http://www.tracheostomy.com/forum/forumdisplay.php?f=4

My own daughter is having an laryngotracheoplasty
(LTP) on May 1. One of the things they'll be looking for is tracheal collapse, or suprastomal collapse. Our ENT has told us if he finds this, he can fix it in the OR prior to decannulation. More than likely, your son is facing a single stage LTP, which would be surgery, and decannulation at the same time. It's a hard surgery, and he'd likely be on a ventilator for a week, and in the PICU.

I know of a boy who is currently in the PICU at Cincinnati CHildren's recovering from a single stage LTP. I'll ask his mom if she'd mind if I share her blog with you, so have an idea. Let me know if you're interested.

Angela
--Previous Message--
: We just found out last week that our son has a
: collapsed trachea above the trachy tube. We
: thought he would be decannulated on
: Wednesday, instead he will begin surgery to
: reconstruct his trachea.
: Does anyone have experience with this sort
: of thing? I guess I am just looking for
: some information. I have been searching
: online and haven't come up with much
: constructive info. We are supposed to go to
: the hospital tomorrow and I don't really
: know what we are in for. Does anyone know
: of an informative website on this problem?
: I would appreciate any advice.
: Thanks
: Marni
:

Message Thread:

Colapsed trachea - Marni 4/21/2008, 3:01 am
- Re: Colapsed trachea - Angela 4/21/2008, 10:34 am
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--Previous Message-- : Hi Marni, you might find more information at : this website: : : : http://www.tracheostomy.com/forum/forumdisplay.php?f=4 : : My own daughter is having an : laryngotracheoplasty : (LTP) on May 1. One of the things they'll be : looking for is tracheal collapse, or : suprastomal collapse. Our ENT has told us if : he finds this, he can fix it in the OR prior : to decannulation. More than likely, your son : is facing a single stage LTP, which would be : surgery, and decannulation at the same time. : It's a hard surgery, and he'd likely be on a : ventilator for a week, and in the PICU. : : I know of a boy who is currently in the PICU : at Cincinnati CHildren's recovering from a : single stage LTP. I'll ask his mom if she'd : mind if I share her blog with you, so have : an idea. Let me know if you're interested. : : Angela : --Previous Message-- : We just found out last week that our son has : a : collapsed trachea above the trachy tube. We : thought he would be decannulated on : Wednesday, instead he will begin surgery to : reconstruct his trachea. : Does anyone have experience with this sort : of thing? I guess I am just looking for : some information. I have been searching : online and haven't come up with much : constructive info. We are supposed to go to : the hospital tomorrow and I don't really : know what we are in for. Does anyone know : of an informative website on this problem? : I would appreciate any advice. : Thanks : Marni : : :

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