Posted by Stephanie on 4/18/2008, 10:11 am, in reply to "update on Kate"
66.102.86.72
I hope you can avoid the trach. My son is 2 yrs old now, and sent 3 months in NICU/PICU. He narrowly escaped being trached. Out of all of the NICU drs, only one believed that Braden didn't need it, he just needed time to grow. This dr decided to try a modified nasopharyngeal tube. It did the job, and by just over 2 months old Braden no longer needed it to breath (even while lying on his back). Have the doctors tried the the NP tube at all? In my opinion it couldn't hurt to try as it is almost like putting in an NG-tube (being a nurse, you probably already know about all the stuff :0) .
I hope all goes well ((HUGS)),
Stephanie
--Previous Message--
: Well, we have been in the picu since monday
: night. They have been observing Kate and her
: airway problems. It has been decided that
: it is time to do something. We have weighed
: all of our options and have decided to try
: the TLA. It was hard to come to a decision
: on this as you guys all well know. Nobody
: seems to agree on what is the best way to
: "treat" the airway obstruction in
: these cases. Not even doctors and people
: that research can. Being a nurse I think
: makes this even tougher. I am well aware of
: all the risks involved in surgery and in
: trach placement. We decided to try the TLA
: first. I have talked with other parents
: that it worked great for their kids. I am
: hoping that this works for Kate too, but i
: know there is a chance it will not. I am
: going to take it one step at a time. Kate
: has no feeding issues at this point, and I
: am hoping that none of the interventions
: that we might have to take will affect that.
: A lot of people that responded to my first
: post were not optimistic at all about the
: surgery, so it was very tough to come to the
: decision. I don't want her to end up with a
: trach, but I know that it may come to that.
: I guess that it is the nurse in me....i have
: seen first hand the complications/infections
: and so forth in kids with trachs although
: none that i have seen with prs. I am praying
: so hard for my baby...pray for us also. I
: will keep you guys updated on the
: progress....Holly and Kate
:
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