Posted by Holly on 4/17/2008, 9:17 pm
68.58.232.244
Well, we have been in the picu since monday night. They have been observing Kate and her airway problems. It has been decided that it is time to do something. We have weighed all of our options and have decided to try the TLA. It was hard to come to a decision on this as you guys all well know. Nobody seems to agree on what is the best way to "treat" the airway obstruction in these cases. Not even doctors and people that research can. Being a nurse I think makes this even tougher. I am well aware of all the risks involved in surgery and in trach placement. We decided to try the TLA first. I have talked with other parents that it worked great for their kids. I am hoping that this works for Kate too, but i know there is a chance it will not. I am going to take it one step at a time. Kate has no feeding issues at this point, and I am hoping that none of the interventions that we might have to take will affect that. A lot of people that responded to my first post were not optimistic at all about the surgery, so it was very tough to come to the decision. I don't want her to end up with a trach, but I know that it may come to that. I guess that it is the nurse in me....i have seen first hand the complications/infections and so forth in kids with trachs although none that i have seen with prs. I am praying so hard for my baby...pray for us also. I will keep you guys updated on the progress....Holly and Kate
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