Posted by Karin on 3/27/2008, 9:27 pm, in reply to "Re: pulling out trach"
68.100.136.199
Alex talked for awhile before he was upsized. He wasn't as vocal as Blake seems to be, unless he was sick and had the support from the congestion. The doc (pulm) seemed pleased that he could do that. I was sorry to see it go with the upsize.
--Previous Message--
: Not at all...I feel the stoma looks
: different..and its clearly popping out much
: further (the trach that is) then usual..it
: looks to small for him...Im completly
: frustrated!
: Question..how much sound is
: "normal" for a trach? Blake is
: now talking more clear without the pmv then
: with...?? he says mama and baba and uh oh
: all the time..without the pmv..just i guess
: passing sound around his trach...now is that
: normal?? I ask..but no one ever answers!
:
: --Previous Message--
: Are you happy with that?
:
: --Previous Message--
: Talked to ent..they want him to wear a trach
: harness..uhh..anyway it wraps under his
: armpits and around his back and counteracts
: his pulling..so that's it for now
:
: --Previous Message--
: Thanks for the suggestions! I deft know its
: not the straps they were brand new and very
: tight around his neck. He pulls down on it
: and it comes out almost backwards. I was
: talking to his nurse last night and she
: agreed that the tube is probably too
: short..as Angela said. I am calling today
: to see what they say..he's had the 3.5
: Bivona since he had his trach.
: Also, I posted before about his ear
: issue..well, they finally agreed to do tubes
: now vs july..but the first opening is not
: till may 23..uhh..so it looks like he will
: get a shot or rocephyn on a weekly basis
: Thanks again for the input!
:
: --Previous Message--
: Hi Melissa, I know it's scary to know the
: trach is out, but it sounds like he's just
: going about his business and not crapping
: out, and that's good news. I agree about the
: twill ties. They are not stretchy at all,
: and there's no way he'd be able to pull on
: the trach enough to get them out. With that
: said, Kate was doing just that and we
: figured out it wasn't that the ties weren't
: tight enough, it was that the trach tube
: inside her, wasn't long enough. She was in a
: 3.5 Neo Bivona for close to a year when she
: started being able to decann herself. Her
: ENT upsized her to a 3.5 Ped Bivona, so the
: inside tube is longer, but not wider.
:
: Just a thought.
:
: --Previous Message--
: Hi everyone..Blake's almost 8 months now and
: just started to completly pull his trach
: out! I unfort have to tighten his straps so
: tight,but he still manages to yank the thing
: out. He doesnt get upset or anything..just
: pulls it out and continues about his
: business. He starts to freak when we start
: to freak..anyway..how can I get him to
: stop..or is there something going on with
: the trach that is allowing him to yank it
: out?? Can he cause any damage by pulling it
: out? I know these are questions to ask the
: dr..but I hate to bother him yet again.
: Thanks
: melissa
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