Posted by Angela on 3/19/2008, 6:03 am, in reply to "Re: my daughter's pierre robin"
72.76.37.40
Ola is right. PRS kids just need time and provided there aren't other things going on, they're fine eventually.
My daughter had a TLA at 3 weeks and a trach at 7 weeks. I was scared too, but Kate is really fine now. She had her TLA take down and palate repaired last year, and she's doing great.
Angela
--Previous Message--
: Which surgery will she have?
: My son had the TLA, trach and G-tube put in
: at 7 weeks old. I was in panic. Now he is 7
: months, he is an extremely active, cheerful,
: sociable boy, will have the palate repair in
: 3 weeks and the tubes will go away hopefully
: soon after.
: I am sure that your daughter will get
: better. Pierre Robin kids need time (som
: more, some less), but they are every bit as
: great as regular kids.
: All the best
: Ola
:
: --Previous Message--
: So I am terrfied, my daughter has a life
: threatening case of pierre robin, she will
: need surgery this week and she is only a
: month old. Can anyone talk with me about how
: to handle this, how long does it take for
: her recovery and help me with this?
:
:
:
Message Thread:
« Back to thread