Posted by Ola on 3/18/2008, 7:50 pm, in reply to "my daughter's pierre robin"
24.45.89.98
Which surgery will she have?
My son had the TLA, trach and G-tube put in at 7 weeks old. I was in panic. Now he is 7 months, he is an extremely active, cheerful, sociable boy, will have the palate repair in 3 weeks and the tubes will go away hopefully soon after.
I am sure that your daughter will get better. Pierre Robin kids need time (som more, some less), but they are every bit as great as regular kids.
All the best
Ola
--Previous Message--
: So I am terrfied, my daughter has a life
: threatening case of pierre robin, she will
: need surgery this week and she is only a
: month old. Can anyone talk with me about how
: to handle this, how long does it take for
: her recovery and help me with this?
:
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