Posted by Karin on 3/12/2008, 7:15 pm, in reply to "Re: 6 month old not rolling back to front or sitting alone"
68.100.143.100
Good progress! I'm very confident he'll pick it up, and this will soon be just a bad memory. Just be glad that the Stage comes with word cards so you can learn what the words to the songs are ... you will hear them an awful lot, I'm afraid. Please keep us posted.
--Previous Message--
: Karin, i bought the toy and he seems to love
: it. Still hates bumbo seat but since I have
: been working really hard with him over past
: 2 weeks - he can sit for 20-30 seconds
: without falling over, so he's making
: progress. Still zero interest in rolling
: over!
:
: --Previous Message--
: Here is a link. You can get it also at
: Amazon
: and Toys R Us.
:
: http://www.fisher-price.com/fp.aspx?st=112341&e=detail&pcat=bulnl&pid=43888
:
: --Previous Message--
: Karin - thanks so much. I don't recall being
: warned against the exersaucer, but it makes
: sense now. Like I said, with 2 1/2 year old
: twins running around it seems like a safe
: option! My twins had these when they were
: little and had no issues so I didn't think
: twice. No, my son is not trached. He is
: lucky enough to be considered
: "positional" and was only on a
: PulseOx and an apnea monitor for his first 3
: 1/2 months of life. No other intervention
: was necessary. Because of that, I was
: terrified of putting him in any position
: that might have compromised his airway
: (including his back, which is funny, b/c
: that's his favorite place to be and has been
: since he was born.) I don't think his doc
: will be "concerned" but I am going
: to ask what they think about PT - it would
: make me feel better if there was some
: intervention. I have the bumbo seat and he
: pretty much hates it as well and the only
: time he tolerates it is when there is some
: sort of toy at eye level - I will have to
: find the “Singing Stage" and give that
: a try! Thanks again for your input!
:
: --Previous Message--
: You mentioned monitors. Is he trached? I
: had
: a few thoughts when I read your post.
: First, my son (who is trached and was born
: on June 19th) was over-coddled by the
: nurses. He was locked in lots of seats and
: never allowed on the floor unless I
: insisted. When we got rid of the nurses and
: switched to a good nanny, his developmental
: skills immediately began to improve and have
: remained steady ever since. Having said
: that, we have some issues with him rolling
: over. He is capable, but unwilling. We
: believe that, because of the trach, there
: has always been someone hovering around, not
: letting him get too frustrated or cry,
: because it would clog his trach. So, he
: lacks a lot in motivation. He has developed
: an attitude about, "If I wait, they'll
: give it to me." (We're trying hard to
: undo that.)
:
: Last, we have (like everyone, I'm sure) been
: warned away from the exersaucer. We have
: never listened to that, and really don't
: intend to listen to it. Having said that, I
: FINALLY got an explanation that makes sense
: to me as to why I might want to be
: concerned. For kids with tendencies to low
: tone or similar issues, the exersaucer
: apparently stimulates lower body strength at
: the expense of upper body tone. Until the
: child can sit up by himself, the exersaucer
: apparently works all the wrong muscles and
: is not truly helpful. (I still think that a
: few minutes a day works the brain more than
: it harms the torso, but that is just my
: opinion.)
:
: My son's tone issues were fairly minor.
: They are real, but the pede isn't worried.
: Early Intervention was gravely concerned at
: first, and now they aren't at all.
: Candidly, all through this, I was never able
: to see what they were talking about. But,
: we did intervene. We found the Singing
: Stage a helpful tool for sitting up, and we
: were told the Bumbo is a good tool for tone.
: My son hated the Bumbo, until we paired it
: with the Singing Stage, and it was smooth
: sailing. Then, ever since his 7 month
: birthday, the Bumbo has been a thing of the
: past.
:
: Anyway, just some thoughts for your
: consideration.
:
: --Previous Message--
: Angela,
:
: Oh no, he's very strong and definitely not
: going to slip through anything. If I had to
: explain it, I would say that b/c he spent so
: much time on monitors, I was afraid to let
: him just be a baby and he was constantly in
: swings, bouncy seat, etc., so he didn't have
: as many opportunities to move around. In
: addition, I have 2 1/2 year-old twin boys
: who make it very difficult for him to be on
: the floor b/c they are like flies on a cow
: around him, so for his safety, he spent a
: lot of time in the exersaucer and the like.
: I JUST bought him a big play yard that
: encloses him so that he has opportunites to
: move around without his big brothers on top
: of him constantly.
:
: I am going to mention hypotonia to my
: pediatrician, but I'm hoping it's just a
: normal developmental thing for him. He
: didn't track objects until he was 3 1/2
: months yet his vision is just fine.
:
: --Previous Message--
: I was going to mention hypotonia before even
: reading through the entire post. I'm not
: sure the correlation between PRS and low
: tone, but it's a definite possibility here.
: When you pick him up, under his arms, can
: you feel his back and torso strength, or
: does he feel as if he's going to slip
: through your fingers?? It can't hurt to ask
: at his well check. Your ped will be able to
: tell and can direct you.
:
:
:
: --Previous Message--
: Hi all - my son has PRS/Stickler Syndrome
: and
: will be 6 months old next Monday, March
: 17th. He is very big (no feeding/weight
: issues), has incredible leg strength
: (prefers to stand to anything else), has
: age-appropriate fine motor skills (using
: both hands, can grab objects), but he has NO
: interest in moving (such as rolling) or
: sitting. I am less worried about his
: sitting, b/c he is not even 6 months yet and
: he can do it for about 10 seconds (he just
: doesn't really want to) - I am most
: concerned that he is not rolling over.
:
: At 3 1/2 motnhs he flipped front to back
: effortlessly, but now HATES to be on his
: tummy and really isn't even trying to flip
: anymore. Even though he can hold his head
: up well, he gets "sad" and kind of
: just lays his head down instead of looking
: around, reaching for things, or trying to
: move/roll over. He loves being on his back,
: and is in love with his toes, but has no
: desire to try and roll over back to front -
: he goes on his side and that's it.
:
: In my heart of hearts, I don't think there's
: a major problem, but I keep reading about
: hypotonia (low muscle tone) on this site, as
: a condition associated with PRS and I really
: don't understand the correlation.
:
: Can someone explain why low muscle tone is
: associated with PRS and also let me know
: what you think about my specific concerns?
: He goes to doc for 6 month well visit on
: 3/18, so I will bring it up then, but would
: love your input and/or insight. Thanks!
:
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