Posted by Becky on 3/4/2008, 11:06 am, in reply to "Bad day... just blabbing!"
98.21.32.178
By the way... the buffet was awesome. Much needed for all our bellies. Carleigh thought she was in a pig trough I think. Plus- they had steak that night and it was ohhh so good! Even had A1 sauce. What a good way to end the day!! 
--Previous Message--
: Hey guys. I am in the "family room"
: at Childrens hospital. My daughter is one
: year old and has PRS. (no trach or feeding
: tube) She had her palate repaired a couple
: months ago and we came today for a swallow
: study. Well since we don't live close to
: Childrens we went ahead and made our genetic
: appointment today also. We went to that
: first and they are a little bit concerned.
: We had bloodwork done, to check the
: chromosomes. Then we had a complete skeletal
: survey done. Oh my word... that was soo
: hard. She screamed so bad and they xrayed
: EVERY bone in her body! They are doing
: that to check for sticklers. It was so hard
: to see her go through that and I just needed
: to share it with someone. I know you guys
: are always so nice. In about a half hour we
: go for her swallow study. She hasn't eaten
: since 8 am and her study isn't till about 4
: pm. We are taking her to a big ole' buffet
: after this! She deserves it. From having her
: blood drawn and them having to
: "dig" for a vein, and then the
: xrays... and in a little bit the swallw
: study.. she deserves a buffet! SO DO I!!
:
: Anyways.. thanks for letting me blab!
:
: Becky*
:
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