Posted by Karin on 2/11/2008, 9:29 am, in reply to "Re: PM valve"
204.227.241.18
Julie -- thanks for the suggestions. I didn't think my son was old enough to understand, and I'm still not sure he gets what I'm telling him, but when we started this sort of process that you describe, things got DRAMATICALLY better. Thank you again.
--Previous Message--
: Hi,
:
: My daughter also has PRS and she was given
: the passe muir valve, that lasted about ten
: minutes, she quickly learned how to blow it
: off and refused to wear it after that. even
: after repeated attempts to get her to wear
: it. However, she is five now and still has a
: trach and can say many things over the trach
: without plugging it up. my suggestion to you
: before you use the passe muir valve is to
: start putting your finger over the trach
: after he takes a breath and then seeing if
: he can push the air out his mouth. also you
: may tell him to try and talk to you while
: your doing this. my daughter was almost
: three when they put one on her and believe
: it or not she knew what to do with it, she
: realized quick it could let her make noises,
: but then she started having difficulty with
: it and would blow it off if she couldnt make
: any noises. It can be a wonderful tool to
: teach them how to breath on thier own but at
: the same time they need to be ready to do
: that. hope this helps,
:
: --Previous Message--
: Ok, y'all, we need help. Our son NEEDS to
: be
: on the PM valve as soon as he can possibly
: tolerate it. This isn't because I want him
: to talk, but it is because the doctor is
: recommending it for several medical reasons.
:
: Long story short -- any tips on helping my
: kid to tolerate the valve? I'll take all
: suggestions.
:
:
:
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