Posted by kRISTA on 1/22/2008, 3:14 pm, in reply to "Teeth"
68.88.99.200
We went to a regulat children's dentist with Emma. She was having teeth come in with no enamel and they were chipping away. After giving the children's dentist Emma's medical history she looked at her told us what she thought than worked with all of our other Dr.'s to find us a dentist that was familiar with PRS and the things that go along with it like being hard to intibate. We went to the specialist and when it came time to do the work we had the dental work done in the hospital so that they would be ready for any problem that might arise.
Krista
Mom to Emma 2 1/2 PRS, CLeft repaired, trach removed, feeding tube, ear tubes and possible sticklers
--Previous Message--
: My son is now 3, he had the jaw distraction
: surgery when he was 2 months old. His
: surgeon mentioned the risk of "tooth
: bud damage" but when all of his teeth
: came in so perfectly and straight, we
: weren't concerned. However, One day (about 2
: months ago) I noticed a huge hole in his
: back tooth. It looked like half of his tooth
: had completely broke off. I asked the
: pediatrician about it, and he told me it was
: just a cavity and that i shouldnt worry
: about it as long as he's not in pain b/c its
: just a baby tooth. About 2 weeks ago, the
: tooth starting hurting him.. so i took him
: back to the pediatrician and he acted
: totally different about it. He was very
: concerned and suggested that i take him to a
: ped dentist. I have an appt tomorrow with a
: "regular" childrens dentist who
: probably knows nothing about Pierre Robin
: Sequence, Cleft Pallet, or the Jaw
: distraction procedure. I am wondering
: whether I should take my son to a specialty
: dentist who has a little more experience
: with anatomical abnormalties. I'm worried
: that someone who is not familiar with such
: issues won't be as careful. Maybe I'm being
: a little overprotective, or totally
: irrational, but I'm worried about the chance
: of the dentist slipping with his sharp mouth
: instrument and cutting the soft palate back
: open. It makes me cringe just thinking about
: it! And what if for some reason he has to
: put my son to sleep for the dental
: procedure, and he has to intubate him? We
: have had HUGE problems with intubation in
: the past. Even if they put a mask over his
: face and give him the sleeping gas that
: way.. theres a chance he will get into such
: a deep sleep, it may flare up his apnea
: again! I am worried outta my mind! I know
: the cavity probably isnt related to PRS in
: anyway, however I am still worried about our
: trip to the dentist.
: Thanks
:
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