Posted by Ola on 1/15/2008, 9:25 am, in reply to "PRS in more than one child?"
18.56.2.97
My son is 5 months old, and has isolated PRS. He has G-tube, trach and TLA. It is very difficult, but he is great! Except speech, he is developmentally on track and is extremely cheerful, it is a joy to be with him. I have never wanted to have more than one child and this did not change, but my husband wanted more (he is an only child himself and thinks it is not good) and PRS did not put him off this idea at all! He is still nagging me and, who knows, maybe I will change my mind...
--Previous Message--
: My daughter who is now almost 11 months old
: was born with PRS and they are considering
: it isolated so far. We've got her eyes
: checked at 5 months and everything appears
: normal so far. The geneticist told me that
: it may be caused by her position in my womb.
: I am soo scared to have another baby. The
: emotional and physical stress makes me just
: want to call it quits. I love her soo much
: and seeing her grow and develop makes me
: want another so bad, but I don't know if I
: could handle bringing another baby in this
: world and take the chance of it having to
: suffer. My daughter's case hasn't been that
: bad. She didn't need a trach or tube, just a
: palate repair and tubes at 10 months.
:
: The hardest part is the constant fear in the
: back of our minds about possible genetic. I
: want to know the truth... NO SUGAR COATING!
: Has anyone else been told its isolated, but
: have had repeated children with PRS? Does
: anyone else no of any causes (besides
: genetic)that can cause this! Thanks so much!
:
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