Posted by Becky on 1/14/2008, 2:25 pm, in reply to "Re: PRS in more than one child?"
98.21.39.202
Oh wow! What a wonderful response! You have a very inspiring outlook on the whole situation. How are your children doing now? How severe were their cases of PRS? Were the twins' the same severity?
From what I understand (just some basic research and talking with doctors) the sequence of events can be caused by other things besides the positioning in the womb. Genetic syndromes can caused a recessed chin... therefore the whole sequence takes place. Its not always just the positioning.
--Previous Message--
: We have 3 children with isolated PRS. I
: almost don't buy the whole "sequence of
: events" thing anymore considering my
: last two were twins. If positioning started
: the 'sequence of events'-- what are the
: chances that an egg would split and both
: embryos have their chins tucked EXACTLY the
: same as they developed? I asked my plastic
: surgeon this and she has no answers. I've
: also posed this question to several PRS
: specialists in Australia. All shrugged
: their shoulders.
:
: After my first daughter with PRS was born, I
: felt the same way. I didn't think I ever
: wanted kids again. I got pregnant when my
: first was 5 months old-- divine
: intervention, I'm sure. Some day though...
: you'll look back and say "that wasn't
: so bad." And someday... when you are
: watching your child playing soccer or
: football, or playing outside you will
: realize it was all totally worth it.. and it
: really wasn't so bad.
:
: Don't let the fear of Pierre Robin Sequence
: keep you from having more.
:
:
: --Previous Message--
: My daughter who is now almost 11 months old
: was born with PRS and they are considering
: it isolated so far. We've got her eyes
: checked at 5 months and everything appears
: normal so far. The geneticist told me that
: it may be caused by her position in my womb.
: I am soo scared to have another baby. The
: emotional and physical stress makes me just
: want to call it quits. I love her soo much
: and seeing her grow and develop makes me
: want another so bad, but I don't know if I
: could handle bringing another baby in this
: world and take the chance of it having to
: suffer. My daughter's case hasn't been that
: bad. She didn't need a trach or tube, just a
: palate repair and tubes at 10 months.
:
: The hardest part is the constant fear in the
: back of our minds about possible genetic. I
: want to know the truth... NO SUGAR COATING!
: Has anyone else been told its isolated, but
: have had repeated children with PRS? Does
: anyone else no of any causes (besides
: genetic)that can cause this! Thanks so much!
:
:
:
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