Posted by Lindsay on 1/13/2008, 11:27 pm, in reply to "Re: PRS in more than one child?"
76.179.43.119
I don't want to scare you or anyone else, but being 22 with PRS I can tell you that this is genetic. My biological father has it.... and three of us kids have it. It is definitely not isolated.
--Previous Message--
: I have 4 kids. My youngest, a daughter, was
: born with PRS. We assumed it was isolated,
: if only because we have 3 sons, all of whom
: were healthy pregnancies and babies. When
: she failed her newborn hearing test twice,
: the hospital sent a geneticist to talk to us
: about Kate and the boys. They asked tons of
: questions (odd ones...how tall we were, all
: our siblings, their eyesight, hearing...all
: sorts of stuff), and ended up testing her
: for Stickler's. The test took a few days,
: and came back positive for Sticklers type 2.
: We had no idea where it came from, who's the
: carrier, or if any of the boys are. The
: important thing for us is that we know, and
: the boys will know.
:
: The more you know, easier it will be to go
: forward. If you want another baby, get as
: much information as you can, the go for it!
: You're lucky. My daughter was hospitalized
: for 80 days, ended up with a trach, and
: feeding tube. If she wasn't my 4th and I
: wanted more, I'm not sure I could go that
: route again.
:
: --Previous Message--
: My daughter who is now almost 11 months old
: was born with PRS and they are considering
: it isolated so far. We've got her eyes
: checked at 5 months and everything appears
: normal so far. The geneticist told me that
: it may be caused by her position in my womb.
: I am soo scared to have another baby. The
: emotional and physical stress makes me just
: want to call it quits. I love her soo much
: and seeing her grow and develop makes me
: want another so bad, but I don't know if I
: could handle bringing another baby in this
: world and take the chance of it having to
: suffer. My daughter's case hasn't been that
: bad. She didn't need a trach or tube, just a
: palate repair and tubes at 10 months.
:
: The hardest part is the constant fear in the
: back of our minds about possible genetic. I
: want to know the truth... NO SUGAR COATING!
: Has anyone else been told its isolated, but
: have had repeated children with PRS? Does
: anyone else no of any causes (besides
: genetic)that can cause this! Thanks so much!
:
:
:
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