Posted by Jane on 1/10/2008, 5:53 pm
207.200.116.9
My son who was born early (taken), was my 5th child, we had never heard of PRS nor any cleft issues on either side of the family. After about 3 yrs old his chin grew and he looked normal, they said 'maybe' he didnt have PRS...but he had the other issues such as the soft palate cleft and early breathing issues. I think back then here in the SW (Arizona)...we just didnt have a professional team. So know one warned me of future problems with this PRS...the reason I just happened to stumble onto this site is....my neice is 20 weeks pregnant and her baby girl has a complete cleft lip/palate..I was looking for feeding help, never dreamed I would see anything about PRS, as I was told in 1989, it was freak and they knew very little, couldnt even give me life expectancy.He is soon 19, doubt I ask any doctors what they know of this PRS.....sur wish I knew back then, I was very scared of not knowing if/when he could die.he was born at 29 weeks...I brought him home after 57 in hosp....with gavage tube and oxygen and breathing monitor...I pumped so he could have my breast milk, and yes, I had 4 other children too. He is a great young man and is always very friendly, knew no stranger. extremely thoughtful to others, opens doors for strangers, visits elderly neighbors always says 'hi' and never needs to be asked for help...I think its due to all the medical attention growing up...was at doctors, therapists,lots of 'hands-on' care, several times a week for a few years.
Message Thread:
« Back to thread