Posted by Angela on 1/10/2008, 8:13 am, in reply to "Re: Pierre Robin Sequence"
71.172.239.139
I'm curious about this too. We have no history of clefts in either of our families, and we had 3 healthy sons prior to Kate. We had never even heard of PRS, or Sticklers, which Kate also has. I wonder how it will affect not only her children, but my sons' as well.
Angela
--Previous Message--
: Have the doctors talked to your son about his
: children? What is the probability that his
: kids will have PRS? and if they do have it
: could they have it worse then he did? Does
: any of your siblings or your sons have the
: risk of being carriers?
:
: I ask this because I had a submucas cleft
: palette and never diaginosed with anything
: else. Throughout my pregnancies (I have a
: healthy 2 yr old and a 10 mon old w/PRS) I
: told the doctors about my cleft palette and
: they said they would check after he was
: born. After my baby was born and diaginosed
: with PRS I'm wondering why the doctors
: didn't see this in my ultrasounds. Looking
: at the pictures you can see that his chin
: was very small. I guess I'm just lost in
: how PRS can effect my boys and
: nieces/nephew's children. My sister is
: pregnant now and the doctors have done a
: very detailed ultrasound, they even called
: the Cleft Palette Team into see if the baby
: has PRS. So far so good, I guess we'll find
: out in March when he makes his grand
: enterance.
:
:
Message Thread:
« Back to thread