[ Respond to this Message | O.F.C.P. Message Board ]
This message board is a place for people to ask questions and share information about issues related to cerebral palsy and other disabilities.
VISIT US AT NEW WEB ADDRESS
Click here to visit new OFCP Forum
Posted by Myrna Myrna.
on January 15, 2007, 10:11 pm, in reply to "Re: the wonders of medical science?"
You're right on ! I was in a similar situation when Alisha was first diagnosed with CP, her initial neuro gave us the diagnosis, told me in his exact words "she'll be wheelchair bound, you won't see her play little league, most likely she won't be able to verbally communicate either, there's a high probability she won't excell at much either". I swear to God these were his exact words. so with that I took up a second opinion, had a much better and friendlier neuro, who actually apologized for his colleagues attitude, and he took us under his wing. well to make a long story short 2 years ago we participated in a study at the Montreal childrens hospital where the researchers did a study on kids with cp to determin their quality of life, the "final" stage of the study was a full assessment by the head neuro, to my surprise it was that very same one who was short of bed side manners to us.. so after the assessment was completed I shook his hand and "thanked" him. he looked at saying it was no big deal, and returned the favor to us for participating, I told him ( while still holding his hand) "NO ! I wanted to thank you for telling me my daughter would be wheelchair bound and that she'd never be on a little league team and that she'd have communication problems most importantly, you said thatchances were she'd never excell, Today was our chance to show you how wrong you were and I wanted to thank you for giving me the strength through your words to be able to prove you wrong!" I had pictures of her at 6 years old playing soccer, horseback riding, swimming, etc.. it just goes to show that doctors may have all the certificates hanging up on their wall and expertise in their fields, but they're never accurate. they'll never be able to tell you what your kids can and cannot do in life. I had 2 choices with her, the first was to listen to him and never let her excel in life, or 2 what i chose to do and that was to let her try anything and not let her disablity take over. in our house there is no such thing as "I can't", its gotta be I'll try it out, and its brought us to a whole new ground for her. thanks for letting me share this, most importantly, never give up. and always believe in the possibilities for your kids.
Message Thread:
« Back to thread
DISCLAIMER:
The opinions and contents of these pages are for general information and intended only as a resource for the user. The information presented here does not, in any way, constitute a referral or recommendation from the Ontario Federation for Cerebral Palsy, of a particular person, organization or treatment.
VISIT US AT NEW WEB ADDRESS
Responses are not allowed!
Click here to visit new OFCP Forum
Create your own free message board!