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cyclophospamide? Posted by grayden on August 17, 2008, 9:54 am 68.96.201.107 has anyone had any experience w/ this drug? my son just started this it's supposed to be for 12 weeks and he's starting kindergarten next week. Terrified of the side effects. has anyone had good luck with this? lot's of ?s if anyone has any feedback I would love to hear it. Thanks Wendi  Post a Response

Re: cyclophospamide? Posted by s-nathan on September 30, 2008, 3:16 pm, in reply to "cyclophospamide?" 40.0.40.10 Our son, 8 and half now, has suffered from biopsy-confirmed MCNS for the last 2 years. Has been on Prednisone for 2 years non-stop...we tried Cytoxan or Cyclophosphamide Aug 2007. Remission lasted 3 months - then he relapsed again. So it was not very helpful; nevertheless it is usually tried to wean off prednisone before other immunosuppressive agents (e.g. CellCept, Prograf, Rituxan, Cyclosporin, etc) are tried. We have been trying CellCept recently There was a 1982 (!!) study in the New Engalnd Journal of medicine - which indicated that Cytoxan seems to be better for children with MCNS who are "frequently relapsers" and not as good for "steroid-dependent." Children who are frequent relapsers can go off of prednisone whereas children who are steroid-dependent relapse when they try to get off prednisone. S-Nathan --Previous Message-- : has anyone had any experience w/ this drug? my : son just started this it's supposed to be : for 12 weeks and he's starting kindergarten : next week. Terrified of the side effects. : has anyone had good luck with this? lot's of : ?s if anyone has any feedback I would love : to hear it. : Thanks : Wendi :  Post a Response

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